ࡱ> pro5@ Abjbj22 2dXX9####D$DB^$^$^$^$^$^$^$^$BBBBBBB$rCREX+B:-^$^$:-:-+B^$^$@Bz-z-z-:- ^$^$Bz-:-Bz-"z--1?!A^$R$ v'H #D- ?BVB0B?6FN-"F,!AF!A^$&z-(|L*^$^$^$+B+B p-  Report of the workshop held in Panama City, November 17-19, 2005 Report presented by Anuar Luna, Mxico Rosa Gonzlez, Honduras Germn Rincn Perfetti, Colombia Per the policies set by CIAT (ITPC/Latin America) a workshop was held with the participation of one member per country from the beneficiary organizations to discuss the priority issues identified for the region. DAY ONE It was decided that Mr. Orlando Quintero, PROBIDSIDA Director (host organization and responsible for the workshop logistics), would be the opening speaker. Ms. Andrade, UNAIDS/LAC Regional Representative, had previously requested the opportunity to present said opening remarks, however this request was denied as this agency is not linked to the CIAT process. However, due to the importance of the agency she represents she was included in the agenda for a presentation at the end of the morning. The workshop guidelines and objectives were jointly defined and an historical presentation of the CIAT (ITPC) process was made in order to clarify any doubts. Many participants were not clear of why they were invited to the workshop and this presentation helped them understand the reasons. CONTENT DEVELOPMENT During the first day three priority areas were addressed: 1. Basic information 2. Adherence 3. Internal stigma 1. Basic information: Using simple technologies, visual aids and metaphorical terms (using the thieves and generals story) a presentation of viral replication was made, which was received with great enthusiasm and surprise as something complex was presented in simple terms. The presentation of the medicine family resulted in the discussion of issues such as activism, advocacy, life quality and exchange of experiences with other countries. In addition to the above, other issues were addressed and clarified such as brand-name medicines, generics and copies, free trade agreement policies, research protocols, laboratory tests, the policies of large pharmaceutical companies and the interests linked to the sale of medicines. 2. Adherence: We had the opportunity to organize workgroups of two participants to expand on and improve the information using the experience of all the participants. Information was provided on genotypes, phenotypes, laboratory tests and resistance. 3. Internal Stigma During the first part a general presentation was made and subsequently, using plasticine and crayons, the participants were able to shape their own internal and external representation of the subject via a catharsis between the information provided and their own experience. At the end of the day an evaluation and analysis exercise was held as part of the methodology. In order to share and improve the learning experiences a table was prepared and presented with all the agenda items developed during the day, together with a worksheet annex, the objective of each work issue and the details of the participatory scheme used, including the dynamics and materials used. An explanation was made to the participants on how the agenda/worksheet of the first day was prepared, the importance of the expectations of the participants as they would offer a indication of the knowledge level of the participants, community guidelines without imposing behaviors, the importance of defining the schedule for days 2 and 3 in such as way to allow for shopping/tourism without missing attendance. The content of the agenda/worksheet for Day 2 was distributed, giving the participants the opportunity to provide input on advocacy strategies to be considered. Feedback from the participants at the end of the day: Maru (Argentina): The expectations were met and the presentations were very good. Angel (Panama): The participatory methodology used was very good. I recently participated in a CDC workshop where strict guidelines were used and it made me feel bad. Here I felt like in a fish in water. Estevan (Paraguay): We did not have the workshop agenda which created a lot of expectation. It was out of the ordinary the CIAT presentation was very informative. Marisol (Uruguay): I liked the participatory methodology, as some have more experience than others, I felt equal to the rest, in terms of differences that are normal in any setting, I clarified doubts and I have more tools/resources now. Colombia: I totally applaud your efforts. I have only been diagnosed for two years and have a lot to learn. I have learnt so much and I really like the methodology. Rubn (Panama): The dynamic has been very good, participation was achieved, and participants such as Estevan had the opportunity to complement the information. Gloria (Uruguay): The rapporteurs have accompanied and stayed with us. In regards to the evaluation of the rapporteur team, it was determined that the coordination which began two days prior to the workshop was the key for its success as we were able to jointly design the methodology, content and work periods allowing for team confidence, security and improved performance. We consider that it was important to define together with the group the work periods, which resulted in full attendance of the participants while allowing for shopping and city touring opportunities, without limiting work time. Based on this, Day 2 began at 7am and ended at 2pm, with two break periods. The support of the host NGO was key for the development of the activities, from the arrival of the participants, the materials, meals and group recommendations. HOURS WORKED DURING DAY ONE: 9 HOURS DAY TWO The session began with two focus questions: What motivates me to work with HIV? Why am I here? The purpose of this was to allow for reflection on a personal level, motivations and their position as activists. The exercise allowed us to find loneliness and evidence of stigma and discrimination in the work undertaken, in spite of obstacles and fears what prevails is the need for survival and the impulse to become involved and continue in the process. In addition to personal experiences what was also demonstrated was the initiative to work for the benefit of other people. We continued with a dynamic to establish limits and clarify the subject of representation and representativity. This allowed for the participants to discuss whether they are representatives or being represented, or when both roles are mingled. The answers clarified the concepts and procedures to establish either one or the other. The third work issue was on networks, using four focus questions: What is a network? How does a network work? What does a network do? How do representation and representativity work in a network? While responding to these questions the participants demonstrated their ability to work as a group and reach joint agreements and include team participation. Work groups imitate many of the problems we face daily and it offered an opportunity for reflection on the same (lack of listening, exclusion). The work finalized with the making of a spider web using a ball of wool in which each participant emotionally suggested what they could contribute. A general presentation was made on the historical and current sense of importance and increase in citizen participation, and the need to expand networks with other social movements. The group concluded after a discussion on the need to motivate participation and creation of alliances with work groups and organizations working in areas different to HIV. At the end of the day an historical presentation was made of the actions that have taken place in various countries to achieve treatment access in retrospect and concluding that no country has voluntarily done so, which demonstrates the need for civil society participation. According to the workshop design we arrived at the segment for receiving feedback in order to improve the process and which were linked directly to the work developed and represented during the day. Comments included: Estevan (Paraguay): I felt more comfortable, I was able to participate more, yesterday I was a little intimidated and preferred to listen. I consider that in my country (Paraguay) we are not performing political work as other countries are and if it was possible for others, we can also do it. Andres (Mexico): The opportunity provided by CIAT is important as the combined experience of all the participants provides a path we can copy, such as introducing advocacy issues. Maru (Argentina): The work of networks is nice in theory, but in practice it can be difficult. In Argentina there are many leaders and other people who want an opportunity, which generates a lot of conflict. The ball of wool shows us what a network really is. It is also the first time I have traveled outside my country for training. Gloria (Uruguay): She is concerned about the lack of participation of transsexuals in the processes and the vulnerability of the same. Yesy (Nicaragua): I knew nothing previously. I take medicines but with no information, I do not know if they are copies or brand-name, I do not know what a CD4 is, I have never had one, and just like me there are probably a lot of people in my country who have also never had the test. Marisol (Uruguay): I liked the exercise where we all moved (as part of the network discussion), which demonstrated that some of us see but do not hear the rest of the group members. It is the second time I have left Uruguay for training. The participants asked the rapporteurs to also share their opinion of the workshop, which they did. HOURS WORKED DURING DAY TWO: 6.5 HOURS DAY THREE This day was dedicated to advocacy and political incidence issues In order to perform a reflective exercise on gender issues it was decided jointly by the group to use feminine language. During the evaluation of this activity the participants, both male and female, mentioned the difficulty of using feminine language, others questioned if it was necessary or not to include this type of dynamic. Due to this it was clarified that they are necessary in order to break power structures because patriarchal and phalocentric cultures have little or no negotiation capacity for women on many issues, including the use of condoms. To involve the participants in the subject of advocacy a focus questions was made: What errands or actions did you have to perform in order to participate in the Panama workshop? After the answers were received the activities of each participant were reframed in terms of planning processes, coordination, prioritization, including everyday issues, in order to determine that planning is a an process to perform and that unconsciously we do it everyday. Subsequently, a presentation was made on advocacy, definition, development, strategies, some participants commented on their experiences in the field in the various countries. Workgroups were used to discuss specific cases that are currently taking place in various countries in the region in which the participants applied concepts. Afterwards a plenary session was held and a play was performed to present the strategies. The strategies represented included the following: Advocacy to obtain medicines for opportunistic illnesses Strengthening of hospitals located in high prevalence zones Demanding a local hospital to question lack of supplies Advocate to influence the national budget (this work group did not arrival at a consensus for the agenda development nor were they able to develop a representation of the situation) In the plenary session an analysis was performed on Group 4 demonstrating that what took place is a reality in our countries, and there is limited capacity for developing consensus and creating alliances. We must learn to address these circumstances, seeking consensus elements and minimum work agreements. The other groups were able to follow-up on advocacy actions, however, it was demonstrated that there is lack of capacity to develop power maps as the representations included only the higher power levels. HOURS WORKED DURING DAY THREE: 6.5 HOURS Final Evaluation: Group 1: Thematic Content We consider that all subject matter was interesting. Estevan I enjoy the adherence presentation, it was interesting to see it presented comprehensively. Marisol The adherence and internal fears presentations were interesting and helped me identify which processes I have experienced without realizing until now. Claudia I liked everything. I liked the gender discrimination and civil participation presentations as it gave us guidelines for better organization. Cesar One of the presentations I enjoyed the most was the one on advocacy as I will be able to implement it with by group. The gender presentation was also important; I have learned a new language as there is a lot of machismo in Latin America. Group 2: Methodology It was innovating as it promoted active participation, humor and was dynamic; there was no pressure or exhaustion, the methodology was easy to apply as very few advance technology terms were used. Estevan scored his participation as 10, Ruben participated more the first day and scored 8, Maru, Activa and Gloria scored 6 each. Group 3: Rapporteur Team The rapporteur team was familiar with all theme matter of all the presentation, appropriate language was used which made things easier, we were given the opportunity to address the issues, we enjoyed the participatory nature and the integration of the participants was a direct result of the rapporteur team. How they scored their participation: Reynaldo: I was able to observe many things, I learnt a lot and have a lot of things to think about. Yessie: I did not participate much my main focus was to listen. Raul: I was passionate we need to change what needs to be changed. Mario: It is difficult to score myself; I reaffirmed what I knew and learn new things. Group 4: Logistics Things to improve: - Air and local transportation was good - Food: No variety - Meeting room: too small - Hotel: the bathrooms did not have soap or shampoo Bayron: I was late and wish I was able to participate more as it is the first regional meeting I have participated in Pan: This is the first time I feel like a fish in water due to the informal approach used for the workshop Bolv: The first time that I participated I did not fit in but these workshops help us grow Estevan: I enjoyed the participation of women on the training team Carlos: It was nice to observe that you all new each other which enabled observatory participation at times. 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